Monday, June 8, 2015

30 Weeks 0 Days

*Sigh* My, oh my, what a lot of crazy days go by!
Are you ready to read a Novel?
It's one of those days.

Joseph, Blake and I went home last night for the first time since Friday. We got home around midnight (our usual bed time). I got in the shower and Joseph got Blake ready for bed. Walking into the house and taking the shower ended up being too much time on my feet and I hobbled to bed. I read Blake a book while Joseph massaged my foot. I took my second dose of MS Contin 15mg at midnight with a Percoset 10/325 and was waiting the hour for them to start working and take my pain away. We sent Blake to bed and Joseph put heat on my ankle. 
1am til about 3am I spent moaning in pain and rubbing my foot on the sheets and Joseph tried to massage my leg. I think my leg has been over-massaged this weekend because massaging seems to irritate the pain level rather than reduce it. We slept about an hour and a half. I woke to more pain and Joseph tried his best to help. After a long while we were able to fall asleep, only to wake 45 minutes later to pain rising rapidly. 6:45am
I called my dad's phone, probably waking him up, saying when I took my meds, that I couldn't take more because the dose would be too high, and asked what to do. He and Mom suggested I call L&D and see what they had to say.
I explained to L&D that my pain was on the rise and that Dr.C was managing my pain meds and wanted to know if I came in, could they give me relief from this pain. They said that they couldn't treat me without consent from Dr.C and that I'd need to call her office at 8am when they opened. Breathing heavily and trying to stay calm despite the raging pain, "So you're telling me that I have to suffer like this for over an hour until she is in her office? There is nothing you can do if I come in for help?!" Again they stated that Dr.C is in charge and until she was in her office nothing could be done. I hung up and called my parents back and told them what was said.

7:30am - Mom and Dad show up and I hobbled out to the car, pain level 10 and rising, and we headed out to Sac at the busiest time of day. Surprisingly, traffic went at a fairly good rate. I wasn't to the screaming level of pain that I was on Friday but the pain was pretty equivalent. Because of what L&D had said, we decided to head straight to Dr.C's office and wait to see her as soon as we could. I'd writhe in her waiting room just so she can understand the intensity of my pain issue. The more we drove, the closer we got to Dr. C's office, the more Dad became upset/irritated that I even have to deal with this level of pain. I asked Mom to call Dr.C's office and make sure she was in today. Mom left an urgent message with the receptionist saying how bad I was doing and we needed to know if we should go to L&D or her office and if there is anything could be done. Dad decided last minute that we weren't going to waste time going to the office and that we were going to L&D to demand help.

8:15am- We arrived at the hospital and Mom ran in to get a wheelchair. She literally ran me through the halls of the hospital to get to the L&D double doors. She hit the "Call" button to request admittance into the ward and a woman from behind us said that she would let us in. We think she thought I was in labor by the way she reacted. I was at the point where the pain was so bad that I was totally unable to cry. Mom ran us up to the counter and gave my information so that I could be seen in triage. One of the nurses recognized me from my Friday visit and exclaimed, "Are you here for your foot pain again?!" They asked us to wait for a little bit while everything was being set up. Dad then showed up (he had been parking the car) and suggested that since I was unable to massage, try standing up. (Standing up at home and applying slight pressure helped for a short time.) I stood up and stood at the side of the wheelchair holding on to the arm rest and bending over, breathing deeply trying to maintain control. One of the nurses commented about me being in full labor and I laughed and said,"If only! That is far better pain than this pain!" I was wheeled right up to a bed and climbed on. I couldn't decide if I needed to lay on my side and clutch the sheets and pillow, sit up and rub my leg, or what, because the pain was insane I couldn't hardly think straight. Mom and Dad answered most of the questions for me because, again, I couldn't think straight. I probably couldn't have told them the date because this pain didn't just envelope my foot and calf, it took over my mind almost completely. The nurses asked what normally is done for my pain and I said that on Friday they had to talk to Dr.C. but when I had gone to the ER in the past, before being on so many narcotics, it had taken 4mg's of Dilauded (10x stronger than Morphine) before I was able to get ANY relief from this pain. They came in and out, doctors were paged, we were told medication would be ordered as soon as the doc assessed me, and we waited. I think this was the first time mom had ever heard me cuss... Pain this bad? . . . it's the first thing out of your mouth.. A cuss word to start off a prayer.

9:00am-  They started an IV and gave 1mg of Dilauded, Zofran(anti nausea), and 10/325 Percoset were given. Methadone (still in my system from Friday,9 Percoset 10/325, and MS Contin 15mg were still on board from hours earlier. Normally I get a head rush from the Dilauded but none ever came. 45 minutes in this bed I was on the verge of screaming, crying off and on, and clutching the sheets/kicking everything else off the end of the bed without realizing it, and my pain continued. Dad offered to massage my leg but it wasn't possible yet. Mom was crying off and on talking with the nurses and doctor. My initial Blood Pressure was 170/120.

10:00am- Pain was still beyond a level 10, I was still writhing in pain but the pain had begun to subside enough that massage was now possible. I'd been rubbing my feet along the sheets for so long that my feet both were numb. Dad massaged my leg for 45 minutes while the doctors checked in. 

10:45am- Pain was level 8, Mom rubbed my foot now, and I was 'back among the living' and able to communicate (without too much difficulty) with the 3 doctors who came in to talk to me. Most of the questions we had were really only geared for Dr.C. Mom called and was able to make an appointment with her just after lunch at 1pm.

11:45am- I was released. Walking was definitely slow and I was limping. All those drugs on board and I was still at a level 4 pain and having random needle-like stabs in my ankle. We went to get lunch at Safeway (Lunchmeat sandwiches!!) and we went over the list of questions we had for Dr. C. Because our appointments with her usually last 2 hours and majorly slow down her day, we wanted to streamline in order to get in and get out. Can you believe they only schedule patients for 10 minute appointments?! We know Dr. C. can't stand us coming in and tying up her day. She let us know last time how late we were making her by showing us her list of scheduled patients. We got to her office shortly after 12 noon and waited there for our turn.

1:10pm- I was called back to the room. My blood pressure was 153/93 with a pulse of 145. The assistant/nurse asked if we knew why my pulse was so high. We suggested low blood sugar? Pain level? Massive drugs on board?
Dr. C. came in pretty tight lipped and asked, "So what's goin on?" I said, "Where do I begin?" My head was starting to pound, my pulse was making my head fuzzy a bit, and I felt like I was in a room that was 100 degrees. Keeping in mind, I'd had just 2-3 hours of sleep over night, massive pain over the weekend, and had just come from the hospital... She seemed to not want to give any suggestions and waited for me to say everything. I was slightly talking like a confused person and Mom jumped in to help streamline things accurately. She backtracked to my Friday episode and filled her in on everything up til this point. I described my pain and she asked, "Well, what is the reason you're here?" I scoffed and said, "I want pain relief and what we're doing now is SO not doing anything. I took percoset every 4 hours over the weekend and pain just continued to rise and rise. This morning was unbearable, just as Friday was, and I can't continue like this." We talked about pain meds and the "no options" I'd had. She stated that she had never had a patient who needed this much medication and I was so beyond everything she knew. I asked questions and she looked at me like I was a crazy person, giving me that slight squinty eyed look when you don't believe anything you're hearing. She walked out to "make some calls to the hospital" and didn't return for 45 minutes. Our room was sooo hot so we opened the door for fresh air. We heard her interacting with other patients. When she walked out of one room, telling a patient that "pregnancy is rough but you're almost there!", and straight into our room and said, "So I've just been on the phone with so many people at the hospital..." Yadda yadda... They basically will not admit me to get my pain under control for ANY reason and the pain specialists she spoke with said, "Why aren't you just increasing her narcotics to cover the pain. That's all the hospital would do IF she were to be admitted."
Dr.C. left the room again to see some other patients make some more phone calls and came back after another half hour. She didn't seem to take things seriously until I, on the verge of insanely frustrated and pained tears, told her that -----"I just spent the last 3 days on my Mom's couch in pain while family members came to help massage my pain away and give heat/ice. My Mom and sister in law are caring for my son. When I am at home, I spend my days sitting in a rocking chair with ice and heat. I haven't been grocery shopping in who knows how long and I haven't been able to attend a church service in 4 months because I can't hardly do anything from the pain. My 2yr old brings me yogurt in bed with a spoon so he can have breakfast. He brings his cup to me at my chair and carries a Gallon of milk from the fridge to me so I can refill his drink. He climbs up on the chairs to grab food out of the cabinet so I can make him lunch. I haven't made a meal for my family in MONTHS because this pain is totally crippling!"----- She seemed to perk up then and then started to ask relevant and interested questions. She suggested that she could write a referral to Pain Management in better terms so that it wouldn't be denied again. She seemed to actually care about me now and actually gave medication advice. She gave permission to increase my meds at certain hours and how to titrate up with other medications. 
Mom asked Dr.C about my 145 heartrate. Dr.C (actually concerned now) then had my blood pressure taken again and it was still high but the rate had now dropped to 125. She ordered special labs for me and at next appointment in two weeks will give me a heart monitor to wear so they can make sure that my heart is functioning properly.
Our '10 minute dr visit' had finally come to a close after 1 hour and 50 minutes.

Surprisingly, the rest of today has given minimal pain. I've taken the Percoset every 4 hours and the second dose of today's MSContin at 8pm. I've been able to hold the pain at level 5 and been able to interact more with everyone. This morning was absolutely horrible, but the rest of the day has not been so. We're praying that this fair amount of relief will continue through the night and the rest of my days ahead.

Blaire has been enjoying her water aerobics classes today. She is becoming quite the little swimmer and loves to slam against the wall at the end of her lane! Blake has overcome his fear of his 'Thailand Screeching Monkey' since I performed some open heart surgery this afternoon, pulled out some stuffing and dumped the noise box into the trash can =)
I had a conversation with my brother this evening.
He called during a slow time at work to catch up on the new happenings in our life.

"Usually things don't go how we want them to or expect them to, but that's life. God has the plans. We just have to wait for Him to lead us and even if it's not what we wanted initially, He brings good to us when we're faithful to trust in Him."

9:15pm - Pain is kicking in ... time for some massaging ...

Sunday, June 7, 2015

29 Weeks 6 Days


2 hours sleep then pain filled the rest of my night. Joseph worked a double shift and so Mom came to bed with me to help rub my leg/foot while it hurt through the majority of the night. Joseph came "home", which means to Fairfield since we've been here since Friday, at 6:30am. We drove to the 24hr CVS to see if we could fill the MS Contin prescription and pay for it out of pocket rather than waiting for the insurance to cover the cost. The pain through the night, Percoset 10/325 not lasting more than 2 hours at a time, made me decide that the medication cost, most likely in the hundreds of dollars out of pocket, would be worth it and we would deal with that as we go. I took my dad's insurance (which does NOT cover anything pregnancy) to see if the pharmacy could put the medications on that insurance and maybe we could squeak by getting the meds covered for now... and potentially pay the full cost later on.
The pharmacy couldn't fill the prescription without transferring it from my Vaca, not Fairfield, CVS. Too bad my Vaca pharmacy didn't open til 10am since it was Sunday =( We got back to the house and Joseph and I squeezed onto my old twin size bed to hopefully get some rest. All of Saturday and through the night I'd taken the Percoset every 4 hours on the dot. The pain kicked in around 3 hours and kept me awake for up to 2 hours at a time then I had a difficult time going back to sleep. So 6:30am we got in bed.
By 8am I'd taken another Percoset and pain was kicking in fast. Joseph was exhausted and tried rubbing my foot. Dad soon woke up and came in to help rub my leg at the same time. Poor Joseph fell asleep trying to help. Dad continued to rub for at least a half hour after that. I was then able to fall asleep for about a half hour. Dad and Blake had left to run to the pharmacy in Vaca for me and planned to use Dad's insurance to see if it would work. He got back around 10am with pills in his hand. His insurance covered the pills with a $30 co-pay.
Mom needed to do some research before I could start the MS Contin. I took my first dose at noon with another Percoset. For the first time in 3+ days, pain finally subsided enough and I was able to sleep for a few hours and spend the next few hours awake with minimal pain. It was so wonderful to be at a very low level of pain for 6 hours! I took another Percoset at the 4 hour mark even though I wasn't feeling any pain. 2 hours after that dose pain kicked in hard. More massaging and moaning were back around for just over an hour and I took another Percoset dose about 45 minutes early.
Pain has been off and on throughout the evening with consistent doses of Percoset every 4 hours. My leg still feels bruised and massaging my leg is starting to become less and less effective. Staying off my foot seems to help the most with the Percoset because when I've gotten back on my foot, the pain comes back quicker. 

Dad rubbed my leg right after dinner. I had him try something I have Joseph do for me. I have him hold the bottom of my ankle and the top of my foot at 90degrees to my leg then slowly pull the foot out of it's joint. It gives relief for about 15 seconds before the pain everywhere else builds and when you slowly allow the foot to go back into the joint, moving ever so slowly to keep everything in line, it feels like when it's going back into place that it's pushing on something and oftentimes is extremely painful even though it initially gives the 15 seconds of relief. Dad said that, to him, that sounds like that would be the bone spur issue causing the pain. We've been talking about my options while I've been here and leaning more toward that surgery post pregnancy. Even if it's just to remove the spur and see how it helps, it will be one way to diagnose and rule things in or out.

Joseph should be here any minute to pick me and Blake up and we're gonna try a night at home and see how it goes. I've missed my comfy bed and cool A/C blowing on me all night =) Twin sized bed for a couple will work but it's not preferrable! I have to call Dr.C in the morning to make an urgent appointment and will have Mom go with me. Then I plan to hang out in FF the rest of the evening in case I need assistance. I have awesome parents who are right there when you need them! Even Chad and Ivory have been extremely helpful in watching Blake for me on limited notice!

It's been a rough weekend.

I'm praying, hoping, and so far counting on 8 weeks to go.
Monday morning counts in 30 weeks =)

Blaire has been quite active and making me a little uncomfy in the last week. 
Blood sugars have been a little elevated, but it's too hard to manage pain and diabetes at the same time. It's just one or the other and that's just how it has to be. Nothing out of control though so I'm not worried about that. So far blood pressures have been great and swelling has been none to minimal for the last few days! No sign of Pre Eclampsia. Non Stress Tests to see how Blaire is responding to whatever starts this week and will be twice a week til delivery.

Saturday, June 6, 2015

29 Weeks 4-5 Days

5am started the beginning of an incredibly long and painful day.

I woke up. Normally I wake with pain throbbing in my leg and foot but this time I just woke up for no apparent reason. The clock said 5am and I laid there wondering why I'd woken. Within just a few minutes time I felt the first pangs in my ankle. I thought,"do I get up and get the heat pack and risk making my foot hurt really bad really quick? or do I wake Joseph and make him do it... my pain isn't that bad." About a minute later I decided to wake Joseph, even though I felt so bad doing it, but I knew that if I were to put any weight on my foot during these early pangs of pain, I'd definitely be paying for it in the next hour. He put the heat on my ankle and started to gently massage my leg. Over the next hour my pain rose to a level 8 and I was very glad I had woken Joseph during the very beginning. He rubbed my leg/foot while I moaned and almost cried in pain for 2 hours and then some. Finally the pain started to subside and was enough so that we could get some rest.

An hour and a few minutes later, around 8:45am the pain came back suddenly. Instead of building like it normally does, this started right off at a level 8 pain. Writhing and moaning again, trying to bear this pain was so difficult. 

By 10:30am I texted my mom letting her know what was going on and asked her to leave Lodi as soon as she could to come get Blake and take care of him.
By 11 I was a bucket full of sobs and crazy immense pain. Nothing helped. I 911'ed Chad to come get Blake. Joseph drove me to UCDavis L&D and I was on the verge of screaming in pain during the 40 minute drive. At this time, I'd been at and above a level 10 pain for almost 2 hours. The Methadone didn't seem to help. The muscle relaxant and Tylenol didn't do anything either. Joseph wheeled me into the L&D triage and I was taken to a room immediately. They couldn't give me any meds until they got a hold of Dr. C since I'd signed a pain contract with her stating that I'd not get any meds from any other doctor except her. This contract is STUPID and ER's should be exempt and be able to get me meds no matter what. The nurses and dr on the floor asked when I'd last been in the ER and what they gave me to relieve the pain. I had a very difficult time trying to give them information since I was still sobbing and writhing in pain.
 
For over an hour I was wishing I was as lucky as one of my friends who was in labor rather than this pain. This pain is waaay worse than labor; give me that instead!

Eventually Dr.C got back to the nurses and doc in triage and said they could give me 10mg of Percoset. 20 minutes later the pain finally got to a level 10 where I wasn't crying and grasping for the edge of the bed, Joseph's hand, or the thickness of the pillow under my head. I was finally able to form complete thoughts and open my eyes enough to look at who was caring for me. It's now 1pm.



By 2pm, the pain still subsiding but now around a level 7, Mom and Dad showed up and Joseph traded places with Mom to sit with me. The doctor came in and was happy to see that I was back to functioning level again. We talked about the plan of action and about my options with medications. I was now out of Methadone because of the drama with Dr.C/pharmacy/Medi-Cal. I got a call from the pharmacy saying that Medi-Cal put another delay on my pain meds because I'm pregnant and they needed to contact my doctor...again. It would have the delay til Monday at least. So the doc in triage, with permission from Dr.C wrote me a script for pain meds to last me from Friday evening to Monday and said that I'll have to get in to see Dr.C on Monday. I'll still be in the jam of Medi-cal not paying for my meds. I'd gone low: 63. I drank a juice and got my level up to 99.

Finally happy to be so much more out of pain. Joseph pushed me down to the main floor just in case it would aggrivate my foot before I could fill my prescription.
We decided to have Dad's insurance pay for the pain pills for now but knowing that they will catch it and eventually make us pay for the full price of the meds. For now though, I have the meds covered and we'll worry about that consequence later on. I called my primary care doc and left a message saying how the insurances were crazy and asked that he work with the OB/GYN docs and write me my pain scripts so that my Dad's insurance will cover the meds with no issues later on. My primary care doc never called me back. I'd asked that the message be tagged as "urgent" and give me a response by the end of the day, 3 hours later, but now I'm just hoping he will get back to me by Monday. We shall see.
I've said before that Dr.C doesn't believe that my pain is real, valid, or significant. She treats me like I'm just another druggie trying to get a fix.... I was glad these nurses and doc was able to see the real physical pain I was in with full meds on board. They were able to see that the pain is real. I just wished (even though I don't care to see Dr.C) that Dr.C would have been able to have seen me and experience the pain episode rather than hearing it from someone else and not believing anything.

We left the hospital and went to Wally-World to drop off the prescription. I wasn't feeling well so I checked my level: 53. Low again. I'd not eaten anything all day and was low from the physical exhaustion my body was experiencing/lack of food all day and was feeling quite sick. I had another juice but it only brought me up to 99. Mom and Dad went out to dinner with Joseph and I to IHOP. I was able to eat a good meal but only took limited insulin, expecting to go low again. I topped out at 171. For a huge meal that is not a good number to top out at. That means that I would have gone very low, continued to go low if I hadn't eaten. We went home to grab some items and then went to Fairfield for the evening and to stay the night just in case my pain worsened.
Doc had me completely stop taking Methadone and start taking the Percoset 10/325 every 4 hours to stave off the pain. Since Methadone is in my system for about 5 days, each day a lower and lower dose in my system, I expect that my pain will be okay in the beginning but rise over the weekend. We are staying here at Mom and Dad's house so they can help me with Blake/pain while Joseph is working. Today Blake and I have slept most of the day away. He was up way too long since yesterday and is catching up now. I'm exhausted from dealing with so much intense pain and took about a 4 hour nap with Blake. Poor Joseph had to get up early for an exam and came home to sleep 3 hours before his shift and a half. So far my pain has come back between 3 & 5 hours after taking a pill, so I'm taking them regularly every 4 hours. I am experimenting this afternoon though and seeing how long I can go without a pill. So far, the longest time I've been able to go is 5 hours, barely. My leg is visibly bruised at one place but my whole leg is bruised to the touch because of the massive hours of hard massaging done while in pain. That means that when I'm in pain now and in the next few days, I"ll have to have massage only on my foot and not my leg so that makes it more difficult to deal with the pain. I've already gone low once today and hope that it won't continue to happen.

This was my longest pain episode yet. For 8 hours I was at a level 7/8 or higher. And for 2-3 of those hours, I was beyond a level 10 pain with writhing and hollering in pain.

Thursday, June 4, 2015

Medication Fiasco Pissing Me Off

Dear Amber: 
I wanted to clarify a couple of things:
1. With the MS Contin you may find that you do NOT need to increase to three times daily after 5d - let me know if you do
2. Please contact me after taking your first dose if this medication is too strong
3. Please DO NOT use any percocet for breakthrough pain if you do not need it.
4. As we discussed - discontinue methadone
Please check in with me tomorrow.
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Dr. C,
My pharmacy has been unable to fill the Oxy.&Perc.. I was told by the pharmacy staff that Medi-Cal requests further info from you, but they have been unable to reach you. You can contact them at 707-446-2400. My last name in their system is "Reeder-Bedford." Also, if these meds are unable to be filled by Friday, I will be completely out of Meth.. I have only enough tabs to last me til Friday night's dose. In that case, what would you suggest I do if I run out and am not able to get Oxy. & Perc. filled? . . .
You seemed to suggest that the dose of Oxycontin 15mg 2xper day might be too strong of a dose. Do I need a smaller dose, eg. 10mg 2x or 3xperday? Or is the 30mgOxy. equivalent to 35mg Meth. I'm currently on? . . . 
Also with the Perc., I had the understanding that I only need to take that for breakthrough pain; if the Oxycontin was unable to cover my episodes of major pain. I don't need to take it otherwise since the Oxycontin should be enough to cover the pain.
-Amber
```````````````````````````````````````````````````````````````````````````````````````````````````````````````````Hi Amber,
I contacted them yesterday and they needed prior authorization requested which I had them fax to me, I filled them out and and sent them, I also notified our authorization person. Our office had no records of receiving phone calls or any notification from the pharmacy or Medi-Cal, nonetheless it is completed now. There is no specific dose conversion for MS Contin, but this should be fine (I don't think there is a smaller dose), so just start with 2 tabs a day and go to 3 if needed.
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Dr. C,
I googled Oxycontin and the lowest dose they have is 10mg tabs. Is there any risk of the 2- 15mg doses per day being too large of a dose? I would much rather take too small of a dose an need to take the Percoset than have the initial dosage be too high. I will start with the two tabs of 15mg if you think that is the correct dose for me.
When I went to the pharmacy today they said that I will be able to pick up the prescription tomorrow, Thursday, and that I have 3 to pick up: Oxycontin, Percoset, and Morphine. I only had dropped off a prescription for the first two. Where did the Morphine come from and would that not be waaaay too many medications for me to be taking?
-Amber
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Amber,
Per the pharmacy formulary the lowest dispensible dose of MS Contin (which is the long acting Morphine Sulfate is 15 mg); For Oxycontin there is a 10 mg dose but the medication I ordered is the MS Contin formulation. Taking it twice a day should not be too high. You can hold off on the third dose if you do not need it. I have no idea where the additional prescription Oxycontin came from came from. The prescriptions I wrote were for:

1. Morphine (MS CONTIN) 15 mg SR 12hr Tablet 
2. Percoset 10/325

I have copies of the Rx I wrote. I have no idea about oxycontin
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Dr. C,
Okay, so MS Contin is NOT the same as OxyContin. I was thinking it was the same medication. So for clarification, I'll be taking the MS Contin (which is also called Morphine Sulphate) 15mg and the Percoset 10/325. And the random OxyContin is the prescription I will NOT pick up from the pharmacy.
Thank you for clarifying. Now I get to talk to pharmacy and get it straightened on their end!
If I'm able to start the Morphine Sulphate today, I'll message you tomorrow letting you know how things are going.
-Amber
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Dr. C
Just so you know my plan, if my meds aren't filled by tomorrow at 2pm I will be headed to L&D to get help there. I don't know where this medication problem is coming from but there is nothing that I can do to make things better and I can't be missing doses due to the risk to baby and my pain level has been steady at level 8+ since yesterday evening. I've been up all night in pain and these issues with the pharmacy are only making my pain issue and baby's potential issue even worse. 
It shouldn't have to take 5 days to fill a prescription especially when the prescriptions are being written for specific days and I can't fill early at all. Taking this to the very end of my week's worth of pills is so not cool.
-Amber
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I am sorry Amber there is nothing I could have done to speed the process up. As soon as I received your message I placed the authorizations. I just contacted the number on the claim form and there is nothing I can do to speed the process. I agree you will need to be seen urgently if your meds are not filled
I actually did not date your prescriptions to be filled at the very end of this of this week. I dated the day they were written specifically to allow additional time. The pharmacy should have copies of the prescriptions, they were not written to be filled late they were dated 5/28/15. Given that at this point I have not been able to find an adequate regimen for you, if this does not work and you do not receive your medication, you will have to be evaluated urgently and I will place an order to pain management clinic specifically for transfer of care for your pain management so that you have a specialist specifically in pain management managing your care. I am sorry we have not been able to control your pain adequately, but we can get you to an appropriate provider.
Thanks, Dr.C

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Really? Wow.. It's taken MONTHS and all this hassle and she finally wants to/gives the option of me being managed by someone who knows what they're doing? She should have done this MONTHS ago when I complained of my pain not being controlled.
She wrote the prescription for 5/28 and I dropped it off the same day. But it's taken her until today to get all the paperwork into the pharmacy... That's so not allowing for enough time to fil the prescription.
Asking questions about why pharmacy needs extra paperwork/information and giving authorization for one prescription at a time over a 3 day span... nope. that's not doing it.

29 Weeks 3 Days


After my physical therapy appointment yesterday afternoon my pain kicked in big time. It came on hard and fast. Thankfully that episode didn't last super long, but instead of my pain reverting to the 5 level pain after the episode it only came down to a level 7 at best. All through the evening and night and into this morning the pain has stayed consistently at that level or higher. Joseph and I were awake most of the night dealing with the pain. We tried ice and heat with massage and it seemed none wanted to work. I was unable to switch positions to try and lay another way because my tailbone was causing soooo much additional pain. I guess I stood/walked too much during yesterday because by the time bedtime came, Joseph had to help me into bed because I was unable to do it on my own. The pain was Very intense. 
Thankfully my swelling hasn't been too bad lately but this morning both my hands were very swollen. My pain is still present at a high level and is starting to rise. I'm now sitting with my foot on ice to hopefully stay the pain. It's interesting with these pain episodes since last night because the pain is still in my ankle but on the outside of the foot rather than the inside where it usually is. I'm assuming the P.T. exercises are at fault for that. I need to call my P.T. guy and see if I'm supposed to continue the exercises despite the pain...

I've been dealing with the hassles of a lazy doctor (when it comes to talking with my pharmacy about new meds), a very confused pharmacy tech, and the hoops of Medi-Cal. I spent a few hours on the phone yesterday with all 3 multiple times and even today, I've already started the calls to the doc and pharmacy. I told the advice nurse who called to ask for more clarification that I was starting to get majorly on edge because the dr. isn't sending in the paperwork the pharmacy needs to fill my prescriptions and my pain meds run out on friday afternoon. She gave me attitude about the paperwork and I told her that since there is nothing else I can do, she needs to call the pharmacy and work it out rather than making me be the middle man. She didn't like it, but I got another call from her a half hour later saying that she talked with the pharmacy and straightened things out.... As of this morning, the pharmacy informed me that my doc only sent authorization for one of my meds, not both... and I still have to be the middle man it seems. =( 
This week has been especially frustrating having to deal with all these med issues and stress out about them not getting filled in time and it seems that I'm the only one who cares or is worried about this. . . . And my pain level is only on the rise.

Tuesday, June 2, 2015

29 Weeks 1 Day


Sittin' here in my easy chair; Halfway dyin' and wishin' I didn't have to be here.

I think my tendency to write a post on painful days rather than the good days comes from me just sitting in my chair trying to be rid of this issue...
But on good days I'm up and about keeping busy and enjoying Blake.


We got home at 4pm and he started playing with his trucks. Pain was packed and hittin' hard so I told him, "if you want to play with your trucks then you have to play in your bedroom, otherwise you gotta just sit on the couch while Moma's hurtin'." I sat down, leaned back on ice, and put heat over my ankle. He came over and asked me to put my foot rest up and said tenderly that I had "owies." I put my footrest up and almost silently he has played at the end of my chair for 30 minutes, running his trucks up and down the footrest; every once in a while commenting on my "owie" and seeing if I was okay.

I had a nerve conduction test this early afternoon. I had requested it from my foot doctor since my research seemed to point in the direction of a Sural Nerve Entrapment. If you've never had a nerve conduction test done...
... lets just say...
It's better than childbirth.
The doctor who performed the test asked a bunch of questions before starting but I didn't bring up anything about my bad back. About 30 minutes into the procedure, 3/4ths of the way through, the doctor asked, "have you ever injured your back? Because there seems to be nothing wrong with the 5 tested nerves in your leg and would seem to indicate that this pain is originating in your back." I told her about my 3 bulging discs and she suggested I continue working with my spine doctor. I had her forward the results to my spine doctor up north, Dr.O.  After this nerve conduction test was finished I made a July appointment to see Dr. O to see what options I have post delivery.
My theory, and strong hope, of the sural nerve being pinched or trapped seems to be totally wrong. Which I'm happy to be able to know definitely that it's not that, even though I was hopeful it was since it had an (fairly) easy fix. We're now back to -is the back causing the foot to hurt, the foot causing the back to hurt, the foot hurting all on it's own or a little of them all in one- issues.

When leaving the appointment, my pain was rising. It peaked once I got home, after picking up Blake in FF and took a while to calm down. I ended up taking my pills at the 5 hour mark rather than the 6-8 hour mark I usually wait for. 

I dropped off my new prescription for the Oxycontin and Percoset at the pharmacy a few days ago. Since yesterday they've been trying to reach my doctor for further information that the Medi-Cal is needing in order to fill the prescription. I called Dr.C's office letting them know that she was trying to be reached. When I got home there was a message on my machine from Dr.C. "Hi Amber. I got your message but no one has tried to contact me. I don't know why they'd need more info"....-silence for 5 seconds- "well, I suppose I can call them with this number xxx-xxx-xxxx" -silence- "um" -more silence- "yeah" -still waiting- "um. ok. So I guess I'll give them a call? Ok talk to you later. Bye"
Really?... and you're supposed to be a professional?

I then called my pharmacy and no one has heard back from my doc... 

So I emailed her by responding to her email, telling her that I need this prescription filled, what the pharmacy staff told me, and that I was almost out of Methadone. I asked what to do if Friday comes and I'm out of one med and the other two aren't filled yet....Cuz that would be NOT GOOD to run out... Not good for me and MAJORLY NOT GOOD FOR BABY! She had emailed me saying to let her know if the new Oxycontin dose was too high and to not take the Percoset unless I absolutely needed it to cover the pain. REALLY??! Seemed to me like she was insinuating that I'd be taking the Percoset for the heck of it... I responded---- extremely annoyed since I'm NOT addicted to the pills---- saying, "With the Percoset, I had the understanding that I only need to take that for breakthrough pain; if the Oxycontin was unable to cover my episodes of major pain. I don't need to take it otherwise since the Oxycontin should be enough to cover the pain."
I hate the insinuations of me being addicted to the pills. She totally skips over the fact that I took less than 1 pill a month in the years before this pregnancy and that I had only taken them for severe pain which, before being pregnant, was almost totally covered by Tylenol and Naproxen.
I'm so done with this lady.
I should only have to see her 2-3 more times so I'm holding on to that to keep me sane.

Rough Day
5:56pm.
Pain finally has subsided to a level 4 pain.
The first time today it's been under a level 7 pain.

Monday, June 1, 2015

29 Weeks 0 Days


It's 1:45pm and I'm in the midst of my 3rd pain episode in the last 12 hours. I can't take any more Tylenol until 5pm because I already took an extra one earlier when I shouldn't have. Heat is doing minimally and ice didn't help at all earlier when I used it. I haven't done anything different than the last few days so there is nothing I can think of that is causing these more often episodes. Early this morning  I was dealing with a lot of pain, Joseph was rubbing my foot, and I was trying to be distracted and I found myself thinking of Job.
Job was such a faithful man of God; never once did he blame or curse Him, but God allowed the pain and suffering (both physical and emotional) to continue at the devil's will.
I know God is allowing this pain for me and I don't know why.
My job is to glorify Him in all I do, no matter the circumstances surrounding me. 
With that thought I started praying.

"God please take this pain from me.
I know you have the ability to do so in Your own time.
Whether You're causing it or You're allowing it at the devil's desire,
Please help me through this.
Please take this pain from me!"

 I was in the middle of major pain, writhing, panting, and trying to deal with it.
And immediately, like a light switch being turned off,
The Pain Was Gone.
As soon as my prayer ended, my pain was immediately taken from me.
And it wasn't the Tylenol slowly kicking in, or the muscle relaxant finally starting to work, 
This Pain Was Taken Immediately As If It Was Never There At All

~ "I will never leave you or forsake you" ~