:: I'm beginning to detest life ::
The only enjoyment I'm getting right now is driving to the radio, cuddling/sleeping next to Joseph, and playing (the little I can) with Blake.
Did I mention previously that I've only made one meal for my family , aside from fresh smoothies, bowls of cereal, and PBJ sandwichs, in the last full month? .... We're living off those because I can't stand long enough on one aching leg to cook meals? Even on the scooter it is still very difficult...
Wednesday night, I had
a hard time falling asleep and had a semi painful night. I woke the next morning,
Thursday, not ready to go to my OB appointment. I was very tired but was able
to leave the house right when I needed to. At the appointment I planned to
switch from this clinic to a different clinic due to not liking they way this
clinic manages the T1Ds. On the way to the clinic, Mom and I talked on the phone.
She was coming from Grandma Audrey’s house and planned to meet me. We ended up
pulling into the parking garage at the same time! She was right behind me. The
appointment went very well. Dr seemed less intimidating and take-charge as she
usually is. Mom and I recorded the conversation so that we could listen back
and remember with better details. For now, I’ll be staying with this doctor and
clinic. Dr said that she can compromise and be fully in charge of my levels,
meaning that NO other doctor will be allowed to see me, suggest insulin
changes, or anything! I think that will help a lot and the dr also said that I
am still the one to be in charge of my pump. She will never force me to make
changes and will not take over the situation entirely. That definitely eased
some of my concerns. I was able to ask a lot of questions and asked what the
benefits were to staying in this clinic vs. changing clinics to have a
different management system. I still believe the other clinic would be better,
less stressful, but am hesitant to change clinics since I’m on so much
medication and they know all my history. If I changed, I’d have to explain
everything all over again multiple times and that’s a hassle. I will stay with
this Dr for now and see how everything goes. I have some more information in
general about how this dr works, how she will let me choose my health options,
and how the hospital runs, so I think things will be fine. My concerns are less
and dr is fully aware of them so I’m pleased with that. Baby was too active to
hear the heartbeat long enough by Doppler. They brought out the ultrasound and
I got to see B. B waved and then continued to flip and roll all around! Quite
active and I couldn’t feel any movement!! That evening, I relaxed at home while
Joseph did dishes, laundry, cared for Blake, and everything else that needed to
be done around the house. I always feel bad that he is doing so much, but I
know that I’m not able to do most of that. Late evening I was in a lot of pain.
During the night, I was up a lot and used ice packs on my foot and back which
helped only minimally.
Friday morning I had a
second dr appointment to get refills of my medications. I had a 10:30
appointment but because I was in SO much pain during the night I called to
reschedule my time slot for later in the day. Between midnight and 10 am, I’d
maxed out on the daily maximum of Tylenol. I’d taken Methadone 2 hours early
than my dose was due. I went to the chiropractor for my back treatment and was
in minimal pain during that time. Once it was over, my pain resumed and Joseph,
Blake, & I headed to Sac for the appointment at 1:50. My foot was very much
swollen and throbbed so I rubbed it most of the drive there, all in the waiting
room, and through the entire 1 hr dr visit. It was not letting up. At the
appointment I expected to not need to increase my dose of Methadone, even
though I’ve had some bad days or nights where I’d needed an additional dose.
When I told the dr, she was surprised that I needed another increase. I asked
if I really did need an increase and she said, “Well if you’ve had 4 days in
the last week and a half, where you’re taking extra doses and maxing out on
Tylenol, then yeah, you need more because we are supposed to be able to cover
your pain completely without the need of ice, heat, and Tylenol. She said that
normally women in pain have less pain during pregnancy and it doesn’t make
sense that I’m experiencing more pain even though I’m on major meds. She couldn’t
seem to comprehend that my pain is mostly my foot and not my back. I was quite annoyed at the end of the
appointment because it seemed like she expected me to have the answers to my
pain. I was adamant that I didn’t know the causes, and multiple specialists
over the last 10 years couldn’t find the source of my pain either. She was at a
loss of what to do. She said she will not increase my Methadone any more. This
is the highest dose I need to be on by the time I deliver. She wants me to
pressure my sports med doc into finding the answer and treat me better. I told
her that I want him to look at the MRI but I don’t really expect him to find
anything. I also said that I think I have a pinched nerve because of my
symptoms from 3 years ago up to now. She said “Well pinched nerves are very
common in pregnancy” and I responded, “I’m not talking about during pregnancy.
This pain is the SAME EXACT pain that I’ve dealt with for YEARS! This is
nothing new! My pain is increasing because I’m unable to get rid of my swelling
at the ankle joint and that is the only way I’ve been able to be nearly pain
free in the past. It’s not unusual for my pain to be like this. I just need
your help to cover the pain best we can because I have no answers.” Anyway. It was a super stupid visit and I left
extremely irritated. I feel like they
look at me as someone who’s mental and just looking for drugs to take and that
my pain isn’t real. Even my foot dr said, “Oh you have a bruised bone. This MRI
shows that and validates your pain.” …..UGH
That evening, my pain was on the rise. We had plans to go to Lodi and visit
family but everyone’s plans fell through. It ended up being a good thing that
all the plans went kaput because my pain was massive. Evening and all night long,
I was moaning and nearly in tears numerous times. Ice wasn’t helping a ton,
Joseph’s massage helped a lot but I was still at crying level, barely holding
it back. I don’t know how long Joseph was awake massaging me but it was a long
night for both of us.
Saturday has been a
stupid day for the most part. This pain has finally subsided after 4pm for no
apparent reason except for possibly the muscle relaxant I took at noon and the
additional 5mg Methadone at 4pm. My fuse
with Blake is extremely short and I’d sent him to rest in bed when he was
whining excessively. I’m super ticked
off. I’m annoyed with these doctors and how they make me feel (really) crazy. I’m
irritated from being off my foot and still having so much pain. I’m irritated
because of using either crutches or the scooter (which is super helpful) is so
cumbersome and just irritating! I’m sick and tired of all these stupid situations.
I know God has a plan and will reveal it in His time (or not, Paul never knew)
but in the meantime, I’m having a difficult time. I’m so ready to check out. I
don’t want to talk to people, hear from people, know people even exist. I want
to take off with Joseph and Blake and just be gone. I don’t want to be stuck in this situation. I
want the days to fly by with barely a memory to remember, just so my days are
over. I’m so just done with this experience. B needs to grow quickly, come semi
early, and let me be done with all of this. With my last pregnancy, I felt like
this at 30 weeks… I’m only at (almost) 18 weeks.
I want to get back to
sleeping at night.
I want to get back to living during the day.
I want to get
back to minimal pain.
I want to get back to me.
Hug!
ReplyDeletePraying for you, Amber! All's I can say is this too shall pass, even though it doesn't seem like it :'( Love you!!
ReplyDeleteI'm not sure you want to hear from me since I realize how difficult your situation is and you definitely don't want advice. But maybe I can share a painful experience I went through a long time ago and it may help you to see that God is working something beautiful in you... a masterpiece that only He can see. As I was singing in church yesterday (the song I texted just a bit of it to you) I was praying for and lifting you up. It is our place as sisters in Christ to hold you up in prayer during this time... to be like Caleb and Joshua as they held up Moses' arms while the battle raged below. Back to my story... I was a young mom with a young toddler son, and I was married to a man whom I couldn't trust; not just his integrity but also his moods. Flying into fits of rage and abuse for minor situations, like whether I talked to a friend on the phone when he thought I shouldn't, or dinner wasn't ready when he wanted it. I lived in fear never knowing what each day would bring and hoping my son would not grow up with that disposition. I prayed and fasted, begging God to do something. My friends prayed and fasted too. I went for counseling with my pastor and although he assured me it couldn't get worse, it did. The last time he beat me so badly I went to the hospital and had broken and bruised ribs, my earring was pushed into my ear too deeply to remove it for the x-rays . By then I had two children and as I waited for the police to arrive we prayed and I will never forget the desperation in my daughters voice as she cried "Please don't let my Mommy die, Jesus! Please don't let my Mommy die!"
ReplyDeleteWell as you know, the Lord was gracious to me and not only spared my life but also blessed me with a loving man and five more wonderful children! He has replaced ALL that the Lotus had eaten and restored so much more! I share this with you because I want you to have hope for the future and all that awaits you. God will heal and restore you. He will make this seemingly unbearable pain to be something you will remember but it will fade as though it were just a dream from another time... i wish I could take this pain away and give you peace, but I know from experience that this pain will bring you closer to the Lord and you will learn to trust Him like never before. The enemy likes to defeat us, to lie to us, to discourage and make us want to give up. But we are more than conquerors through Christ! "We will not be shaken! We will not be shaken!" I love you!